Heavy Heart

My heart is so heavy tonight and has been for the past few days. I don't even know this family, but they've touched me to the core. I found out about them through the wonderful multiples group I am a part of. You can read their blog, but I will give you an overview. I am asking everyone who reads this to pray for this family and pray for a miracle. The blog is:  http://mcgregorsrus.blogspot.com/ The story is (don't quote me for complete accuracy but it's to the best of my ability): twin boys born 9.5 wks early. Stayed in NICU for a few weeks. Came home. Doing well. Went for 2 month check up. Found out the bigger of the two had a congenital heart defect. He was very short of breath, which led to extensive testing and mitral valve stenosis was diagnosed. Since the beginning of November he has had 3 open heart surgeries (chest still open d/t swelling) been on ECMO, ventilator, peritoneal dialysis, and currently possibility of hemodialysis. I've never heard of such an intricate, delicate case as this. Neither have the doctors. All organs, except for the heart, were fully functioning until the surgeries - now the lungs and kidneys are failing. He needs a heart transplant but can't get on the list until he is otherwise stable. He is only 13 weeks old and he is fighting for his life. A life that was assumed to be "normal" when he was discharged home after a strenuous NICU stay.

Why does this affect me so deeply? I'm not exactly sure. Because she has twins and I have twins? Because the mother has been away from one baby to be with another like I had to do (but for only a week and nothing life threatening)? Because they believe in miracles when others don't and because I believe in miracles when others don't? Because she is at the bed with one baby fighting for his life while her other baby is being cared for by someone other than herself and I have two healthy babies sleeping down the hall that I got to spend the whole day with? Probably all of the above.

This story saddens me. But it also gives me hope. Because this family is not giving up. They are giving God the glory and trusting in him. And that is reassuring that you can be in a place such as this and still have hope. And I've never been more thankful for my babies.

Will you please keep this family in your prayers? People all over the country are praying for them. Won't you join us?

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